Most people with intellectual disabilities live at home with their families. Valuing parents' views and their knowledge of their children is crucial to the effective provision of health care.
A number of articles are being prepared for this section. Please let us know if there are new topics that you would like us to include.
People with intellectual disabilities and their parents are at risk of being undervalued and stigmatized.
Research has now moved away from looking at family dysfunction and increasingly recognizes the successful, resourceful ways in which families adapt and provide care.
Young adults of whatever ability want to feel more independent in the way they live their lives, whether this is in education, employment or another activity.
In 2002 I heard 'Laura' give her first presentation at a local authority event. It was an important milestone for Laura - a teenager. Her presentation was so moving that I invited her to share it with a wider audience. Her only request was that her name should not feature. The following is the script from which Laura read.
Teaching her how to adapt to the world is on going. Life gets more complex and it all needs explaining. But now I have less fear and more trust. I am trying to find that balance to help her develop herself but not lose herself. Not an easy job for any parent!
This article considers the views of parents on disability and discrimination.
This article gives the views on disability of a brother and sister.
Parents with an intellectual disability continue to face a high risk of losing their children. However, there is evidence that innovative schemes and appropriate support can enable them to care for their children.