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ASSESSING THE VALUE OF THE INTERNET IN HEALTH IMPROVEMENT
Jim Blair
| The internet is a powerful tool that
provides easy access to information. Many people access it
for health information and bring the material gathered to
health appointments. However, the information may not always
be correct or adequately monitored for quality. This could
lead to some of it being harmful. This article examines whether
or not the internet will enable us to lead healthier lives.
The need for a quality label, how professionals must become
adept at using the internet, the possibility of a digital
divide exacerbating health inequalities and the dangers of
misusing the internet's interactive elements are examined. |
The internet provides easier access to health information than
ever before, but is it enabling us to lead healthier lives? It
has been estimated that it took 30 years for people to get used
to the idea of radio, approximately 13 years to be gripped by
television and yet the internet has been accepted in about five
years (Adams, 2000). The internet seems to be everywhere and everything
appears to be on it.
Virtual reality and the internet are becoming key components
in our lives and consequently telemedicine and telecommunications
can be involved in almost every area of healthcare - from consumer
and provider education to the diagnosis and treatment of disease
(Ackerman, 2001). However, having health information at one's
fingertips may not always enhance our lives and could lead to
a number of harmful, unhealthy problems. Care must be taken when
accessing information (Figure 1), though there are many reliable
sources of information (Figure 2).
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FIGURE 1: ASK THESE QUESTIONS WHEN ACCESSING HEALTH
INFORMATION WEBSITES
- Who is publishing the material?
- How often is the site updated?
- What qualifications do the authors hold?
- Is the material peer reviewed?
- What are the website's guidelines to authors?
- How can you contact the website owners to enquire about
credibility of the material?
- Who / what is the source of the material accessed?
- What is the level of evidence required for information
published on the website
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FIGURE 2: USEFUL HEALTH INFORMATION
- Department of Health - providing health and social care
policy guidance and publications. www.dh.gov.uk
- The Cumulative Index to Nursing and Allied Health (CINAHL)
database is US based and focuses on subjects related to
nursing and allied health. www.library.ucsf.edu/db/cinahl.html
- National Electronic Library for Health programme works
alongside NHS libraries to create a digital library for
NHS staff, patients and the public. www.nelh.nhs.uk
- NHS Direct- aims to enhance access to care and health
information for the general population. www.nhsdirect.nhs.uk
- NMAP - provides free access to a searchable directory
of carefully selected and evaluated quality internet materials
in nursing, midwifery and the allied health professions.
This database is updated on a weekly basis. www.nmap.ac.uk
- OMNI - provides free access to a searchable directory
of handpicked and evaluated, quality internet resources
in health and medicine. This database is updated weekly.
www.omni.ac.uk
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Who accesses health information?
There are more than 605 million internet users world wide (Tua
Internet Surveys, 2002), and over 34 million active users in the
UK (Nielsen NetRatings, 2002). Internet penetration continues
to be closely linked to age and income - it is most popular among
younger and middle age groups, and higher income groups. Ninety-three
million Americans or 80 per cent of adult internet users have
searched for at least one of the 16 main health topics online
(Fox and Fallows 2003) (Figure 3).
FIGURE 3: HEALTH TOPICS SEARCHED
ONLINE HEALTH TOPIC |
INTERNET USERS WHO HAVE
SEARCHED FOR INFO ON IT (%) |
Specific disease or medical problem
|
63 |
Certain medical treatment or procedure
|
47 |
Diet, nutrition, vitamins or nutritional supplements
|
44 |
Exercise or fitness
|
36 |
Prescription or over-the-counter drugs
|
34 |
Alternative treatments or medicines
|
28 |
Health insurance
|
25 |
Depression, anxiety, stress or mental health
issues
|
21 |
A particular doctor or hospital
|
21 |
Experimental treatments or medicines
|
18 |
Environmental health hazards
|
17 |
Immunisations or vaccinations
|
13 |
Sexual health information
|
10 |
Medicare or Medicaid
|
9 |
Problems with drugs or alcohol
|
8 |
| How to quit smoking |
6 |
Eighty-five per cent of women and 75 per cent of men using the
internet have searched for at least one of the major health topics
(Fox and Fallows , 2003).
People seeking health information on the internet do so to become
informed, to prepare for appointments and surgery, to share information,
and to seek and provide support. There are not many studies exploring
why patients and carers use the internet to acquire health information,
or whether they find it helpful and easy to use. One likely reason
is that it provides an easy method of acquiring information. Additionally,
the internet may offer a "second opinion" without the
difficulties of a referral.
The internet is empowering health consumers and users of services
to find information about health services and treatments, and
supporting self-help and patience choice. This is because it is
accessible and doctor-patient relationships can lack attention
to detail and the personal touch. However, those seeking information
on the internet have reported that their experiences of health
services have altered along with their relationship with their
doctors, but not always for the best (Fox and Fallows, 2003).
The balance of knowledge between patients and health professionals
The balance of knowledge between patients and health professionals
is altering because of the internet, enabling patients to become
more involved in the healthcare decision-making process. However,
there is growing concern that the internet is creating a new health
inequality; a "digital divide". This divide refers to
the gap between those who access, and therefore use, new technologies
and those who do not. The latter are already unequal, for example,
the poor, the homeless, the intellectually disabled, the elderly
and people from developing countries. Internet users tend to be
young, affluent and employed. It is vital that the health inequalities
that are present in the real world do not become exacerbated in
the virtual world.
Many patients, when attending an appointment with a health professional,
regularly bring a printout from a website (Hoban, 2004). However,
this information may not be accurate and could lead to misleading
interpretations with potentially dangerous consequences. As a
result there is a growing urge for health professionals to construct
their own patient-orientated websites (Clement et al, 2002). For
example, the Royal College of Speech and Language Therapists (RCSLT)
launched a website, Talkingpoint, which was developed in partnership
with two charities to provide information about speech, language
and communication difficulties in children. "Talkingpoint"
(www.talkingpoint.org.uk) has been set up in response to research
that showed awareness and understanding of speech and language
difficulties is poor, and that people find it hard to access relevant
information. Another example is the Department of Community Health
Sciences at St.George's, University of London in London, which
has set up "Drs Desk" (www.drsdesk.sgul.ac.uk),
a site aimed at patients and health practitioners that provides
online material including drug information, journals and references.
The quality of information on the internet
The internet has increased the quantity of information available
without necessarily enhancing the quality. Websites should specify
the level of evidence required for information they publish. Even
on credible websites, information may not always be current or
accurate. In this respect it would be useful for websites to identify
the evidence on which the information is based as well as the
source of the information and its credibility.
There is a range of tools that can be used to assist in evaluating
and rating the quality of websites, for example, quality labels,
codes of conduct and user guidance systems. A universally recognised
sign or quality logo (similar to the security padlock which indicates
a "secure" site) signifying that health information
contained on a site meets certain set standards would be beneficial
for patients, carers and health professionals. It would ensure
that patients and carers would be assured about the reliability
and validity of the information and it would assist health professionals
when guiding patients and carers as well as providing them with
clearly robust material to use in their practice. Until such a
quality mark is in existence it is essential that patients and
carers are encouraged to seek out information in a critical manner.
Positive impact of the internet
The internet has the ability to improve lives and link the isolated,
whether they are people with intellectual disabilities, older
people, people with mental health problems, nurses, other health
professionals or members of the public. This presents a challenge
for those educating health professionals to ensure they have the
skills to help people who are often marginalised to participate.
The internet can be used as a resource for patient teaching.
Blair (2002) suggests that intellectual disability nurses could
use the virtual world to support people who have to undergo treatment
at their own homes. This could reduce anxiety and may provide
people with an enhanced opportunity to make more informed choices.
An example of this would be using the "virtual dentist"
to prepare a client for dental treatment before visiting the actual
surgery. Such an approach could be adapted to meet the needs of
the many different groups of people. Caution is needed though
as reliance on the virtual world may make it hard for people to
orientate themselves to real-world settings.
Educating the new health professionals
Those educating the next generation of healthcare professionals
must make sure they are effectively equipped to use the internet.
The NHS Plan (Department of Health, 2000) calls for the use of
personal electronic health records to improve patients' knowledge
and involvement in their treatment and care. The plan also commits
the government to invest in information technology to enable services
to be provided "more conveniently for patients". Central
applications to be developed between 2003 and 2005 include electronic
appointment booking, electronic prescribing and electronic patient
records for acute, community and primary care trusts. The creation
of NHS Direct as first a telephone services and then as an online
resource signalled the government's intention to use technology
to improve the accessibility of care and information (www.nhsdirect.nhs.uk).
Education and training in the use of the internet and other electronic
media in professional practice must start at the beginning of
professional programmes and carry on into continuing professional
development courses. The push towards evidence-based practice
makes accessing the latest information vital. The internet is
a good medium for this purpose. Blair (2002) highlights that it
is imperative students are educated to use the internet and other
electronic media in order for future health professionals to meet
the challenges and expectations of patients and clients over the
next decade and beyond.
While teaching in the use of the internet does take place, it
is in the main ad hoc. Appropriate "start up" modules/courses
need to be devised. Such modules/courses should also combat the
"fear factor" that exists among some health professionals
in relation to the use of the internet, computers and other electronic
media. However, one of the benefits of learning online is 24-hour
access to a virtual classroom and information resource. Access
and time to learn to use electronic technologies is essential.
This should lead to an effective use of technology and healthier
lives for us all.
Conclusion
Although the knowledge obtained from the internet can empower
patients and carers, there are concerns about the quality and
quantity of information, how patients and carers use it and how
it can affect them. Patients and carers must be critical of information
obtained via the internet. Without such critical analysis, use
of the internet for accessing health information could be detrimental.
A universally recognised quality mark would assist in addressing
these concerns. It is vital that we question the quality and quantity
of health information available on the internet in order to ensure
that such knowledge is delivered in a manner that will enable
use to lead healthier lives.
References
Ackerman.M, (2001) New release - technology is shaping the future
of health care. Available from www.nih.gov/news/pr/mar2001/nlm-12a.htm
Adams.d, (2000) The internet: the last battleground of the 20th
century BBC online at http://www.bbc.co.uk/radio4/douglas_adams/
Blair. J, (2002) E-Learning: a virtual challenge to educators.
Nursing Times 98(31): 34-35
Clement.W.A, et al (2002) A guide to creating your own patient-orientated
website. Journal of The Royal Society of Medicine 95: 64-67
Department of Health (2000) The NHS Plan. London: DoH
Fox.S, & Fallows. D, (2003) Internet health resources: health
searches and email have become more commonplace, but there is
room for improvement in searches and overall internet access.
Available from: www.pewinternet.org/report_display.asp?r=95
Hoban.V, (2004) Nursing in the electronic age. Nursing Times
100(10): 18-22
Kershaw.A, (2003) Patient use of the internet to obtain health
information. Nursing Times 99(36): 30-32
Neilson NetRatings (2002) Internet usages statistics for the
month of September 2002, UK, Available from: www.nua.com/surveys/how_many_online/europe.html
Nua Internet Surveys (2002) How many online? Available from:
www.nua.com/surveys/how_many_online/index.html
| This article first appeared
in the Nursing Times, 31st August 2004, 100(35): 28-30. |
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