CLINICAL
GUIDELINES & INTEGRATED CARE PATHWAYS FOR THE ORAL HEALTH
CARE OF PEOPLE WITH LEARNING DISABILITIES
Extract taken from www.rcseng.ac.uk
3.1. Oral health Care of the Pre-school and
School Age Child
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Prevention and Promotion of Oral Health
The consumption of sugary foods and drinks should
be limited to meal times.
Cariogenic snacks should be avoided between meals(5).
Collaboration between dentists and dieticians will
ensure that appropriate preventive advice is offered
Sugars should not be added to bottles of infant formula
or follow-on formula.
Sugary drinks should not be given in bottles or feeders,
especially at bedtime.
Infants should not be left to sleep with a bottle
containing sugary or acidic drinks, which will lead to dental
decay and erosion of tooth enamel (100).
Prolonged use of feeding bottles should be avoided.
Fruit flavoured sugar containing drinks should be
limited to meal times.
Parents should be advised that some baby juices are
acidic.
Ensure that, as far as possible, when medicines are
given they are sugar-free (102).
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Use of Fluoride
Fluoride toothpaste should be used (6)
Children over the age of 6 years should be encouraged
to use standard (1000ppm) fluoride level toothpaste (99)
Direct supervision by an adult is advisable (99).
Parents should be fully involved in the decision
to supplement fluoride levels (99).
The risks and benefits should be carefully explained
so that parents can make an informed choice.
Professionally applied topical fluoride should be
biannual (6).
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Oral Health Education
Instruction in oral hygiene and motivation are important.
The dental team should appreciate the everyday problems
encountered by parents who are attempting to implement a
good oral health care routine.
The causes of gingival bleeding should be explained.
Oral hygiene programmes should include supervised
toothbrushing sessions.
Oral health education should be given to parents
and support services.
Use of chlorhexidine mouthwash or spray over short
periods can be beneficial. (153; 154).
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Education and Training of Parents, Carers and Professionals
Parents and professionals need to be aware of the
possibility of dental pain.
A dental opinion should be sought for unexplained
changes in a childs behaviour.
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Integrated Care for the Pre School and School Age Child
Information on access to available services should
be circulated to parents, carers and health.-care professionals.
Early referral to the dentist should be encouraged
from child development teams and bbconsultant paediatricians
(107).
Health care professionals and carers should be advised
of the alternative ways in which oral healthcare can be delivered
e.g. home visits, mobile dental units, in special schools
in addition to a dental practice.
Professionals should collaborate to identify children
with learning disabilities in mainstream and special education
centres and refer to the appropriate oral healthcare services
(107). |
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Initial Visit
An oral health care plan should be agreed with parent/carer/child.
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Regular Attendance
Regular visits and reviews should be established
(60) and tailored to individual needs.
Acclimatisation to dental treatment should be provided.
Provision of regular monitoring is the key to the
prevention of pain and infection.
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Oral Health Screening
Oral health assessment should be included as part
of general health assessment.
Screening programmes should be developed and sustained
in special schools and special needs units in mainstream
education.
Local programmes and dental services should be developed
that address the demographic and geographic needs of the
local population.
The increased use of mobile dental units in mainstream
and special schools should be explored.where appropriate.
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Fissure Sealants
Children at risk of dental caries should have fissure
sealants applied to permanent teeth (6) soon after eruption.
Parents should be advised of the need for regular
monitoring and maintenance of fissure sealants (6).
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Working with Schools
Oral health education programmes should be established
in special schools and units.
Oral hygiene should be included in the childs
Individual Educational Plan.
Oral hygiene should be included in personal hygiene
training.
Healthy eating policies should be promoted in schools(114).
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Oral Care and Treatment Strategies for the SchoolAge
Child:
A friendly and supportive clinical environment should
be provided.
Continuity of dental personnel and a team approach
should be maintained.
Children should be acclimatised to the clinical environment
gradually.
Each step of any treatment should be explained clearly.
Disability awareness training including learning
disability for the dental team should be available.
Equal access to dental treatment under sedation and
general anaesthesia should be available.
Access to emergency treatment under general anaesthesia
for pain relief should be provided.
Increased resources for treatment under sedation
and general anaesthesia should be made available.
Home visits should be provided when required.
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Orthodontics
Refer early with comprehensive information.
Obtain an orthodontic opinion before arranging treatment
under a general anaesthetic.
Treatment plans should take into account child compliance
(117).
Avoid extracting permanent teeth until co-operation
and oral hygiene are adequate.
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| 3.2
The Transition Stage |
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Oral Health Education and Promotion
Oral health education programmes should be developed
that address the needs of individuals and carers (personal
or professional).
Advice should be given on the effects of smoking,
abuse of alcohol, general substance abuse, and if appropriate,
these issues should be highlighted with carers and parents.
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Professional Oral Health Care
Contact should be maintained with the same dental
practitioner wherever possible.
Preparation for transition should be made one year
in advance and introductory visits bbarranged to the new
dentist if appropriate.
Referral schemes should be developed to enable continuing
oral care.
Everybody should have a clear policy on oral hygiene
with established links to local dental services.
Oral health should be part of the individual healthcare
plan.
Educational institutions should include oral health
as part of training or socialisation programmes.
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| 3.3
Adults and Older People |
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Dietary Advice
Dietary advice for all people with learning disabilities
should be made within the context of healthy eating policies
(131)
Carers and health professionals should be provided
with training to promote healthy eating and its effect on
oral health (131).
Policies should be developed to ensure referral to
and advice from the dental team to instigate appropriate
prevention techniques.
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Oral Health Education
Oral health education should be provided for all
and tailored to individual needs.
All carers (family or professional) providing care
or support for individuals unable to care adequately for
themselves should be given advice in oral health education(8).
Oral care to be provided at home for people with
learning disabilities should be documented in individual
oral care plans.
Standards for oral care should be part of operational
strategies in individual residential homes.
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Oral Assessment and Care Planning
Everyone should have a regular oral assessment.
The frequency of oral assessment should be related
to the individuals needs.
Carers should be encouraged to obtain an oral health
assessment for their client.
An annual assessment should be carried out for people
who are edentate.
Assessment should be more frequent for those with
multiple disabilities, those on sugar- based medication
or sugar-based dietary supplements and other risk factors
for oral health.
Oral care should be an integral part of social care
planning and should be included in national, local and residence
based learning disability strategies(21).
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Individual Oral Care Plans
A written care plan should follow individual assessment.
Oral care plans should include a record of professional
care to be provided by the professional and the daily oral
care to be provided at home.
Oral care plans should be part of Health Care plans.
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Treatment and Care
Treatment and care should be offered based on the
needs of the individual (37,41,47).
Frequency of appointments should be determined by
the need for acclimatisation.
Treatment and care for adults unable to give informed
consent should be discussed with family, carers or advocates.
Protocols for oral care should be developed for adults
who are unable to make decisions and give consent for their
treatment and care (41,47,138).
Secondary services and in particular general anaesthesia
and sedation services should be available locally.
Waiting times for treatment should be comparable
to those for the general population.
Emergency care for people with learning disabilities
should be available on the same basis as the general population.
Treatment and care should be provided in an empathetic
and knowledgeable environment.
Oral care and treatment should be provided on a flexible
basis dependent on the personal circumstances of the patient
e.g. domiciliary care provision and using mobile facilities.
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Referral and Discharge
Effective referral mechanisms should be developed
to encourage multidisciplinary referral of people with learning
disabilities to oral health care services.
Effective referral mechanisms should be developed
for adults leaving hospital and for those moving between
residential homes.
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Older People:
Oral health care services should be similar to those
available to the general population.
Oral care for older people with learning disabilities
should take into account the difficulties and barriers posed
by both advancing age and learning disability (8).
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People with Medium and High Support Needs
Primary dental care services should continue to be
developed for all adults with learning disabilities.
Services should be provided in general dental practice
for those who are more independent.
Services should be provided in the Community Dental
Service for those with higher levels of dependency.
Health Authorities should include oral health care
specifications for people with learning disabilities in
Health Improvement Plans.
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| 3.4
Communicating with People who have Learning Disabilities |
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The oral healthcare team should know and record
details of the patients preferred method of communicating.
Appropriate language must be used.
Speech should be slow and clear.
The patient should be spoken to directly, using the
name they prefer.
The Oral Health Care Team should be trained in basic
signing and communication skills.
The patient should be given plenty of time to respond.
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| 3.5.
Management of Specific Complications |
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Drooling
A multi-disciplinary team should make an individual
assessment (141).
Techniques designed to improve posture should be
implemented (141).
Treatment should be started with non-pharmacological
and non-surgical methods (141).
There should be careful monitoring for oral complications
if surgical or pharmacological treatment is carried out
(140) .
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Bruxism
Construction of splints may be helpful but its success
is dependent on patient compliance.
An opinion should be sought from an appropriate dental
specialist if required.
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Erosion
Patients should be advised to use fluoride mouthrinses.
Toothpaste low in abrasion and high in fluoride should
be used regularly (144) (not for children below 6 years).
Professional application of fluoride varnish is advised.
(143,144)
Dentine bonding agents may be of value (143) in the
treatment of patients with erosion.
An opinion should be sought from an appropriate dental
specialist if required.
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Dry Mouth
Saliva replacements may be useful.
The use of sugar-free chewing gum and sugar- free
fluids should be advised.
The mouth should be examined frequently.
Fluoride rinses should be considered to reduce risk
of dental caries.
An opinion should be sought from an appropriate dental
specialist if required.
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Self Injurious Behaviour
All dental causes should be eliminated (148).
Construction of mouthguards or other oral appliances
should be considered.
Distraction and behavioural psychology is a useful
management option.
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Feeding Problems
Individual assessment should be carried out.
Good oral hygiene should be promoted.
An intensive regimen should be followed to prevent
oral disease.
Dentist and family doctor should be consulted for
advice.
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| 3.6
Use of Sedation for People with Learning Disabilities |
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Each person should be assessed individually
Appropriate facilities should be available(115).
The dental team should have training in the use of
sedation for dentistry.(115).
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| 3.7.
Use of General Anaesthesia for People with Learning Disabilities |
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The appropriate resources and facilities for general
anaesthetics should be available locally to treat people
with learning disabilities (115).
General anaesthesia should be the last choice for
treatment (115).
Collaborative work should be undertaken with professional
colleagues to minimise the number of general anaesthetics
required.
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Levels of Evidence
| Level |
Type of Evidence |
| Ia |
Evidence obtained from meta-analysis
or randomised control trials |
| Ib |
Evidence from at least one
randomised control trial |
| IIa |
Evidence obtained from at
least one well designed control study without randomisation |
| IIb |
Evidence obtained from at
least one other type of well designed quasi-experimental
study |
| III |
Evidence obtained from well
designed non-experimental descriptive studies, such
as
comparative studies, correlation studies and case control
studies |
| IV |
Evidence from expert committee
reports or opinions and/or clinical experience of
respected authorities |
Grading of Recommendations
| Grade |
Recommendations |
| A>
(Evidence levels Ia, Ib) |
Requires at least one randomised controlled
trial as part of trhe body of literature of overall
good quality and consistency addressing the specific
recommendations. |
| B>
(Evidence levels IIa, IIB,
III) |
Requires availability of well conducted
clinical studies but no randomised clinical trials on
the topic of recommendation. |
| C>
(Evidence level IV) |
Requires evidence from expert committee
reports or opinions and/or clinical experience of respected
authorities. Indicates abscence of directly applicable
studies of good quality. |
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