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An understanding of the nature of intellectual disability is essential for health care professionals, who are required to support equal access to their services for all disabled people.

WHAT WE KNOW ABOUT SUPPORTING PARENTS

- Intervention in the family must respect and support the emotional bond between parents and child.

- Support should be provided to parents and children as people first.

- Support is most effective when it is consistent, non-intrusive and non-threatening.

- Parents should be enabled to participate in the making of decisions with a bearing on their family life.

- Support is more effective when aimed at the survival and maintenance needs of families, followed by childcare tasks, than at modifying styles of interaction within the family.

- Service providers must be responsive to any informal supports already in place.

- Parents should be made to feel in control of events.

- The attitude of those who deliver the support is crucial in determining its effectiveness.

 

 

This site was developed as a collaboration between the Down's Syndrome Association and the Division of Mental Health at St George's, University of London, with financial support from GUS Charitable trust and the Department of Health in England.