Lack of trust
Many parents have had bad experiences of the services in the past and are often
reluctant to seek help, even when they need it, for fear of where it might lead.
They know they are under surveillance. They perceive social workers as being
too ready to take their children away ('over-zealous in their assessment of
risks', according to the Social Services Inspectorate). And they know that if
the system turns against them they are powerless to resist. Not surprisingly,
many parents adopt a strategy of avoidance: evading contact with people they
see as being a threat to them and their family. This strategy has two consequences.
It increases the risk of them being labelled as uncooperative, which makes action
against them more likely. It also cuts them off from the services and supports
they need, which makes it even more likely they will run into difficulties.
Research indicates that parents
will decline or withdraw from professional services if: the services do not
meet their needs; the language and resources used are inappropriate; the parents
become 'over-serviced' by too much input; they suspect or learn that their competence
is being questioned; professionals are dishonest, disrespectful or negative
in their attitudes toward them.
(McGaw, S. (1998). Working with parents who happen to have intellectual disabilities.
In E. Emerson et al, Clinical psychology and people with intellectual disabilities,
Chichester: John Wiley, 193-209).