LINKS

ADHD On-line support group
www.adders.org
Our objective is to promote awareness to AD/HD (Attention Deficit/Hyperactivity Disorder) and to provide information and as much free practical help as we can to those with the condition, both adults and children, their families in the UK and around the World via this website.

Advances in Psychiatric Treatment
apt.rcpsych.org/
Advances in Psychiatric Treatment is aimed at practising mental health professionals who need to be kept informed of current ideas, techniques and developments in psychiatry. Each issue includes commissioned articles dealing with physical and biological aspects of treatment, psychological and sociological interventions, management issues and treatments specific to the different psychiatric sub-specialities.

Ann Craft Trust
www.anncraftrust.org
National Association working in the interests of people with Learning Disabilities who may be at risk of abuse. Has useful publications and links to related websites.

American Association on Mental Retardation
www.aamr.org
On-line resource which aims to augment AAMR's activities and give rapid access to information about the mental retardation and disabilities field.

Angelman Syndrome Support Education and Research Trust (ASSERT)
http://www.angelmanuk.org/title.htm

The Big Tree
http://www.thebigtree.org/
The Big Tree is a way in to the internet about important things for people with a learning disability. It is like a very big library or place to find information. You can also find other people who are interested in the same things as you. The aim is to make it easy for people with a learning disability to use.

British Epilepsy Association
www.epilepsy.org.uk
Website containing "everything you need to know about epilepsy". The site also contains an Email Helpline service which will do its best to email you a reply to an issue which is not included on the site within 48 hours.

British Institute of Learning Disability
www.bild.org.uk
BILD is the British Institute of Learning Disabilities, a not for profit organisation with charitable status, which exists to improve the quality of life of all people with a learning disability. The site provides information, publications and training and consultancy services for organisations and individuals.

British National Formulary
www.bnf.org
Website providing UK healthcare professionals with authoritative and practical information on the selection and clinical use of medicines in a clear, concise and accessible manner.

The Choice Forum
http://www.learningdisabilities.org.uk/page.cfm?pagecode=FBFMCH
The Choice Forum is an online discussion forum on issues in the lives of people with learning disabilities in the UK. It brings together people working with people with learning disabilities, national and local policy makers, service providers and purchasers, parents, carers and people with learning disabilities. It is a forum where you can ask questions, find answers, and share ideas with others with similar interests.

Commission for Social Care Inspection
www.csci.org.uk
Get free, independent reports on the quality of your local care services and accessible information about choosing the right social care for you.

Contact a Family
www.cafamily.org.uk
Directory of the organisations in the UK who provide family support (and often very useful medical information for professionals) on a wide range of syndromes including rare conditions.

Connects, the Mental Health and Learning Disabilities portal
www.connects.org.uk
Connects is a worldwide, interactive, personalised forum for the sharing of information by people interested in mental health problems and/or learning disabilities. Contains more than 8,000 resources including details of news items, events, websites and organisations.

Cruse Bereavement Care
www.crusebereavementcare.org.uk
Cruse Bereavement Care is the national organisation for bereaved people. Some Cruse branches have bereavement supporters who work with people with intellectual disabilities. Cruse provides information about local bereavement support services and also gives welfare advice (tel: 0845 7585 565).

The Department of Health - Learning Disabilities
www.doh.gov.uk/learningdisabilities

Developmental Disabilities Program, University of Western Ontario
www.psychiatry.med.uwo.ca/ddp
The overall goal of the DDP is to promote optimum health care for persons with a developmental disability through education, research and service.

Down's Heart Group
www.dhg.org.uk
The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects. The site contains information about heart defects, tests and procedures, and other topics of interest, as well as details of the support and information available from the Down's Heart Group.

Down's Syndrome Association UK
http://www.downs-syndrome.org.uk
Large website that also contaions a lot of downloadable medical information on Down's Syndrome and useful links

Down's Syndrome Medical Interest Group
www.dsmig.org.uk
This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. It has been produced by the UK Down's Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down's syndrome in the UK and Republic of Ireland.

Down's Syndrome Scotland (formerly Scottish Down's Syndrome Association)
www.dsscotland.org.uk
The website of Down's Syndrome Scotland, formerly known as Scottish Down's Syndrome Association. The site provides a source of information and news on the organisation's current activities throughout Scotland

Dr. Alper
http://www.myhq.com/public/a/l/alper/
Site for Medical Professionals that includes many useful links.

Easy Info
http://www.easyinfo.org.uk
Site aiming to make information easier for people with learning difficulties. The website is about bringing people together, finding out about good ways of working and sharing ideas. Easyinfo.org.uk is for everyone working with people with learning difficulties and for people with learning difficulties themselves.

Epilepsy:
National Society for Epilepsy www.epilepsynse.org.uk
British Epilepsy Association www.epilepsy.org.uk
Two large epilepsy charities producing a wide range of resources and medical information - users need to register to obtain password to log on to professional sections.

European Association of Intellectual Disability Medicine
www.mamh.net
MAMH is an organisation of European doctors working within different specialties who are committed to high quality medical care for people with learning disabilities. It aims to bring together knowledge of service provision, medical education, research and evidence based medical care from Europe and the rest of the world and to eventually establish 'Intellectual Disability Medicine' as a specialty in all European countries.

Evidence Based Bulletins (Wales) - Learning Disabilities
http://hebw.uwcm.ac.uk/learningdisabilities/index.htm
Thorough review of evidence in literature for various aspects of the management of people with Learning Disabilities.

FAS Aware (Foetal Alcohol Syndrome)
www.fasaware.co.uk
FASAWARE is one of three UK charities dedicated to providing support and education to the general public about FAS. It has numerous resources and links to UK, international, and other sources of information.

The Foundation for People with Learning Disabilities
www.learningdisabilities.org.uk
This is a site is run by the Foundation for People with Learning Disabilities, the leading UK charity researching learning disability issues. The site features the latest news and events on learning disability issues, as well as information on topics such as advocacy, accommodation and employment.

The Fragile X Society
www.fragilex.org.uk
A page containing information on Fragile X syndrome, its causes, its effect on families, and information on the Fragile X Society.

International Association for the Scientific Study of Intellectual Disabilities
www.iassid.org
The International Association for the Scientific Study of Intellectual Disabilities is an international and interdisciplinary scientific organization that promotes worldwide research and exchange of information on intellectual disabilities.

Independent Inquiry into Access to Healthcare for People with Learning Disabilities
www.iahpld.org.uk
The Secretary of State for Health announced the establishment of an Independent Inquiry into Access to Healthcare for People with Learning Disabilities on 31 May 2007. The Inquiry will focus on the action needed to ensure adults and children with learning disabilities receive appropriate treatment in general healthcare in England; this means acute medical (hospital) care and general primary care, not mental health services or specialist learning disability services.The Inquiry is chaired by Sir Jonathan Michael MB, BS, FRCP, FKC. The Inquiry team consists of a panel of experts on health and social care services working with a panel of people with learning disabilities who have experience of using services.

Housing Options
http://www.housingoptions.org.uk
Housing Options is an independent advice and information service for people with learning disabilities. The aim is to assist people with learning disabilities achieve greater control over aspects of their life and to provide more housing and support choices.

Leeds Antenatal Screening Service
www.leeds.ac.uk/lass
Leeds Antenatal Screening Service (LASS) was established in 1991 to provide screening tests for NHS units, GPs, private laboratories and individual fee-paying patients. Profits are used to further research in screening and prenatal diagnosis.

Medical Aspects of Mental Handicap
www.mamh.net
Read the latest news about Learning Disability Services in different European countries.

Mencap learning disability helpline: 0808 808 1111
www.mencap.org.uk/
Mencap is a UK charity working with and for people with a learning disability and their parents and carers.
The helpline offers free, confidential and independent information and advice on virtually any subject to do with learning disability. Mencap has a lot of local knowledge, and a network of connections nationwide. This means that they can link you up with organisations or services in your area that can help.

MSc in Intellectual / Learning Disability Studies
(University of Birminham)
http://www.neuroscience.bham.ac.uk/PostgraduateTaught/msclds/index.htm
This postgraduate programme is designed for experienced professionals involved in the care of people with a learning disability (the term used in the UK in place of ‘intellectual disability'). It provides inter-professional education on a part-time distance basis and students learn from specially-prepared study texts, weekend schools and local tutorial groups. This is the only course in the UK and Ireland which covers the whole field of learning disability and attracts students from a variety of backgrounds.

The National Association for the Dually Diagnosed
www.thenadd.org
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs.

National Electronic Library for Health
www.nelh.nhs.uk/nelld
The aim of this site is to provide access to best current knowledge in relation to the development and delivery of services for people with a learning disability.

National Institute of Mental Health - Learning Disabilities
www.nimh.nih.gov/publicat/ldmenu.cfm
Includes a booklet providing information on learning disabilities and the role of NIMH sponsored research in discovering underlying causes and effective treatments. Also includes press releases and details of the latest clinical trials.

NHS Direct Online
www.nhsdirect.nhs.uk
This site was re-launched in 2001 - one of the features includes an interactive email facility where users can enter their query, and it will be responded to by a health information professional within five working days. It also features a health encyclopaedia covering illnesses and conditions, tests, treatments and operations.

National Autistic Society
www.nas.org.uk
Largest UK charity working for people with Autism. Useful list of publications, information and links to autism sites.

National Society for Epilepsy
www.epilepsynse.org.uk
The National Society for Epilepsy is committed to providing information and support to people with epilepsy. It also provides care for people with epilepsy through medical and residential services.

Norah Fry Research Centre
http://www.bris.ac.uk/Depts/NorahFry/
Research on services for people with learning disabilities.

OMIM - Online Mendelian Inheritance in Man
www.ncbi.nlm.nih.gov/Omim
This database is a catalog of human genes and genetic disorders with up-to-date medical reviews of each.. The database contains textual information, pictures, and reference information.

Ouch!
www.bbc.co.uk/ouch
The BBC's disability website.

The Prader-Willi Syndrome Association UK
http://www.pwsa-uk.demon.co.uk
The PWSA (UK) is the only organisation in the UK and the Republic of Ireland to address the unique needs of people with PWS, their parents, carers, enablers, and professionals from health, education and social services who work with them.

The Prader-Willi Syndrome Association USA
http://www.pwsausa.org
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals and aimps to provide education, and support services to its members.

RD4U
www.rd4u.org.uk
RD4U is Cruse Bereavement Care's Young People's Website which is designed for young people by young people, and provides support to people after the death of someone close. It has a (monitored) message board and other youthful therapeutic activities, and an email support service manned by trained young volunteers. The upper age limit for users of the site is 25 years old.

Royal College of Psychiatrists
http://www.rcpsych.ac.uk/
Clicking on the publications page of this site leads you to fact sheets and leaflets. Books Beyond Words (as featured in 'Learning about Intellectual Disabilities and Health') can be ordered via this web-site.

Royal National Institute for the Blind
www.rnib.org.uk
The RNIB site contains information on common eye conditions; practical help with everyday living at home, work and school; information about how sight problems affect the population, and accessible materials and links to resources in your area.

Royal National Institute for Deaf People
www.rnid.org.uk
Award-winning website containing information for deaf people on services, support and resources.

The Same as You
www.scotland.gov.uk/library3/social/tsay.pdf
An NHS Scotland review of services for people with learning disabilities in Scotland.

The Tuberous Sclerosis Association
www.tuberous-sclerosis.org
Website of the Tuberous Sclerosis Association, a UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC).

Unique
www.rarechromo.org
Unique is a source of information and support for families of children with rare chromosome disorders.

Web resources in the UK
www.43green.freeserve.co.uk/uk_downs_syndrome/ukdsinfo.html
A site with many useful links to UK sites on Down's Syndrome

Williams Syndrome Foundation
www.williams-syndrome.org.uk
Contains information on Williams Syndrome for parents, and also more in-depth medical information.

Valuing People Support Team
www.doh.gov.uk/vpst
Valuing People is the name of the government white paper for people with learning disabilities. "Valuing People is all about everyone working together so that the lives of all people with learning disabilities are better." The site has information and news on VP, as well as regional news and a link to the white paper.

Valuing People Support Team: "All Means All"
http://www.valuingpeople.gov.uk/documents/AllMeansAll.pdf
Link to a pdf file of the "All Means All" document.

Voice UK
http://www.voiceuk.org.uk/
Voice UK is a national charity supporting people with learning disabilities who have experienced crime or abuse. They also support their families, carers and professional workers.

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