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Family

Most people with intellectual disabilities live at home with their families. Valuing parents' views and their knowledge of their children is crucial to the effective provision of health care. A number of articles are being prepared for this section. Please let us know if there are new topics that you would like us to include.

Page Overview of Learning Disability in Children
People with intellectual disabilities and their parents are at risk of being undervalued and stigmatized.
Page Children Should Be Seen and Heard: A Young Carer's Personal View
In 2002 I heard 'Laura' give her first presentation at a local authority event. It was an important milestone for Laura - a teenager. Her presentation was so moving that I invited her to share it with a wider audience. Her only request was that her name should not feature. The following is the script from which Laura read.
Page Family Issues
Research has now moved away from looking at family dysfunction and increasingly recognizes the successful, resourceful ways in which families adapt and provide care.
Page Ophir: A Mother's Story
Teaching her how to adapt to the world is on going. Life gets more complex and it all needs explaining. But now I have less fear and more trust. I am trying to find that balance to help her develop herself but not lose herself. Not an easy job for any parent!
Page Parents with Intellectual Disabilities
Parents with an intellectual disability face a high risk of losing their children. This fact holds in all countries with a well-developed system of child protection services.
Page Parents' Views
Parents views on disability and discrimination.
Page Parents' Perspectives As Their Child Approaches Adulthood
Young adults of whatever ability want to feel more independent in the way they live their lives, whether this is in education, employment or another activity.
Page Siblings
Siblings views of disability.
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An understanding of the nature of intellectual disability is essential for health care professionals, who are required to support equal access to their services for all disabled people.