Paul Adeline | Roger Banks | Diana Andrea Barron | Elizabeth Blackwell | Jane Bernal | Jim Blair | Tim Booth | Elspeth Bradley | Lisa Bridle | Gary Butler | Sue Carmichael | Sally-Ann Cooper | Shoumitro Deb | Elizabeth Dormandy | Margaret Flynn | Peter Gilbert | Dan Gordon | Rob Greig | Angela Hassiotis | Sheila Hollins | Patricia Howlin | Jane Hubert | Ray Jacques | Michael Kerr | Mary Lindsey | Theresa Marteau | Debra Moore | Raja Mukherjee | Max Neill | Gregory O'Brien | Vee Prasher | Jay Rao | Sarah Rutter | Ruth Ryan | Manga Sabaratnam | Neill Simpson | Susan Snashall | Anya Souza | Alice Thacker | Jo Violet | Irene Tuffrey-Wijne | Laura Waite | J. Margaret Woodhouse | Fiona Yaron-Field
SHEILA HOLLINS (MB, BS, FRC Psych, FRCPCH), the Editor in Chief of this website, is Professor of Psychiatry of Learning Disability in the Division of Mental Health at St. George's, University of London. In 2005, she was elected President of the Royal College of Psychiatrists. She is also Vice President of the Institute of Psychiatry and Disability.
She has numerous publications on intellectual disability and mental health, and is also the editor of the 'Books Beyond Words' series of counselling picture books for people with intellectual disabilities. She is internationally known for her research into the effects of bereavement in the lives of people with intellectual disabilities.
DIANA ANDREA BARRON (MBBS CPE DRCOG DFFP MRCPsych MSc) is a Specialist Registrar in Psychiatry of Learning Disability working in Camden Learning Disabilities Service. Her current interests include, the Law in relation to medicine, transition, qualitative research and medical ethics.
SANDRA BAUM is head of learning disabilities (LD) psychological services and associate clinical director (LD) for Oxleas NHS Foundation Trust. She is a consultant clinical psychologist and a systemic psychotherapist. Sandra has worked with people with learning disabilities for over 25 years. Her clinical work and research interests focus on using systemic approaches with families and staff teams, and on improving services for parents with learning disabilities. She completed her post-qualification doctoral research on the mothers with learning disabilities experience of losing custody of their children. She is co-editor of Intellectual Disabilities: A Systemic Approach (Karnac) published in 2006 and has written many articles on the use of family therapy with this client group. She is also co-editor of Good Practice Guidance for Clinical Psychologists when Assessing Parents with Learning Disabilities published by the British Psychological Society in 2011.
ELIZABETH BLACKWELL edited a newsletter for parents of children with Down's Syndrome for many years. She has also taught a foreign language in further education classes and works as an interpreter. Her teaching has shown her that the imaginative translation of difficult concepts, including the use of an element of drama, can help them to be understood by people with intellectual disabilities. Her daughter's great interest in dance has led Elizabeth Blackwell to work as a costume designer and assistant of the special needs Larondina Dance Company which tours to display talent and to propagate positive attitudes towards people with intellectual disabilities.
PENNY BLAKE has been working as a doctor in the field of psychiatry since 2003 and has specialised in Learning Disabilities since 2008. She is a Specialist Trainee level 5 in Learning Disabilities in Abertawe Bro Morgannwg University NHS Trust.
DEBORAH BOWMAN is Senior Lecturer in Medical Ethics and Law and Deputy Head of the Centre for Medical and Healthcare Education at St George's, University of London. Deborah's work focuses on the human interactions in ethics, both in healthcare education and clinical practice. As an accredited mediator, Deborah is particularly interested in the negotiation of boundaries between 'ethical dilemmas' and 'disputes'. Deborah Bowman has a commitment to encouraging engagement in clinical ethics contributing to public events such as the Cheltenham Science and Literary Festivals, an open lecture series organised by the University of the Third Age, and the non-academic media. Deborah has been an advisor and regular panellist on the BBC Radio 4 series 'Inside the Clinical Ethics Committee' since it began in 2005
LISA BRIDLE (B. Soc. Wk (Hons), PhD.) is a social worker and mother of three. Since the birth of her son, Sean, who has Down's syndrome, she has been actively involved with disability advocacy and parent support organisations in Queensland, Australia. Lisa's doctoral research study, "Stories of Choice: Mothers of Children with Down Syndrome and the Ethics of Prenatal Diagnosis", examined the ethical issues presented by prenatal testing for disability.
Lisa currently works for a community-based change organisation, Community Resource Unit Inc, in the role of leadership development for people with disability, families and others working for positive change in the lives of people with disability. These leadership development efforts are directed to assisting people with disability to belong to and contribute to community life. Lisa’s previous work roles have included disability advocacy, community development, and university teaching.
CARLY M BUSH (MBBCh, DCH, DRCOG) is a GP trainee from West London developing a special interest in paediatrics. She did her pre-speciality training in Surrey including posts in acute and long stay hospital wards, paediatrics and emergency medicine.
|GARY BUTLER My work at St. George’s University of London started on the 8th of April 2002. My role includes teaching medical students and other healthcare professionals how to communicate with people with learning disabilities, as well as trying to help make documents for people with learning disabilities more accessible. I also work with the Baked Bean Theatre Company. This group of actors with intellectual disabilities have been putting on performances for ten years, as well as educating people at conferences throughout London and the southeast. Recently, I co-wrote a book called “A New Kind Of Trainer”, which gives a detailed account of how I went about finding and applying for the job at St. George's, as well as the different things that I do in the job.|
PHOEBE CALDWELL is a practitioner who has been working for 30 years with people whose severe learning disabilities are linked with behavioural distress. Many of the children and adults she sees have Autistic Spectrum Disorder. She was a Rowntree Research Fellow for four years, looking at best practice. She teaches management, therapists, parents, teachers, advocates and carers, and is also employed by NHS, Social Services and Community and Education Services to work with individuals for whom they are finding it difficult to provide a service. In 2010 she was awarded the Times-Sternberg Prize for her work on autism and her contribution to the community, and later in 2011 she will receive a DSc from Bristol University for her work on autism.
SALLY-ANN COOPER is Professor of Learning Disabilities at the University of Glasgow and Honorary Consultant in Learning Disabilities Psychiatry with the Greater Glasgow Primary Care NHS Trust, Glasgow, UK. Her research interests are the health needs of adults with learning disabilities, particularly the epidemiology of mental health and mental ill-health. She chaired the working group which developed DC-LD.
DELPHINE COYLE is a Specialist Registrar in Child and Adolescent Psychiatry working in Camden MOSAIC, an integrated service for children and young people with disabilities or complex developmental needs. She enjoys research and has done research into Community Treatment Orders (CTOs) and Metabolic Syndrome and is the first author of multiple publications, including most recently in the Royal College of Psychiatrists' Journal, 'The Psychiatrist'. She was one of only four Core Trainee Doctors nationally to be shortlisted by the Royal College of Psychiatrists for the Core Psychiatric Trainee of the Year Award 2010.
SHOUMITRO DEB is Professor of Neuropsychiatry and Intellectual Disability in the Division of Neuroscience at the University of Birmingham, Birmingham, UK. He has been involved for many years in research in the field of neuropsychiatry of intellectual disability and the neuropsychiatric consequences of acquired brain injury.
ELIZABETH DORMANDY (MSc) is Research Fellow in the Psychology and Genetics Research Group at King's College, London. Trained in biochemistry, she worked for three years educating health professionals about prenatal screening. She is currently completing the final year of her PhD examining the influence of health professionals and service delivery upon uptake of prenatal screening tests.
DAN GORDON is based at the Department of Sports Science, Anglia Ruskin University, Cambridge, UK. He is Principal Lecturer in Exercise Physiology, Course Leader Sports Science and consultant physiologist to Great Britain’s Paralympic athletes 2000-2004. He has worked extensively with both elite and non elite athletes with special interest in athletes with a disability. Through this specialised area Dan has focused on the physiological and metabolic responses to training with particular reference to cardiovascular adaptations. Dan has published extensively on physiological responses to both acute and chronic bouts of exercise showing the relationship between diet, metabolism and skeletal muscle physiology.
ANGELA HASSIOTIS is a clinical academic at the Royal Free and University College Medical School and Consultant Psychiatrist in Intellectual Disabilities in Camden. She is author of several original papers and co-supervisor/applicant of an MRC funded project on the epidemiology and sub-typing of dementia in older people with ID (M-Bold study). Research interests of the unit of intellectual disabilities at University College London (Bloomsbury campus) include evaluation of mental health services, epidemiology of mental disorders and service use in people, diagnostic issues across the lifespan in intellectual disabilities and ethics in clinical practice.
JANE HUBERT is Senior Research Fellow/Honorary Senior Lecturer in Social Anthropology in the Division of Mental Health at St George's, University of London. Her main interests are the familial, social and cultural aspects of intellectual disability, especially with regard to people with severe intellectual disabilities and mental health problems, and their families; and also the experience and effects of institutionalization and deinstitutionalization on social, individual and gender identity. Her recent research includes bereavement and loss; black and ethnic minority family carers and psychotherapeutic outcomes for young men who have been abused and who show abusive behaviour.
|RAY JACQUES is a Consultant Psychiatrist and Clinical Director for Learning disability Services in Gwent Healthcare NHS Trust, Gwent, UK. He has an interest in systemic therapies and family and disability issues.|
|MICHAEL KERR is Professor of Learning Disability Psychiatry at the Welsh Centre for Learning Disabilities, Cardiff, UK. He qualified at Bristol University and trained as both a general practitioner and a psychiatrist. His research interests are in epilepsy and healthcare delivery to people with learning disabilities.|
THERESA MARTEAU (PhD, CPsychol) is Professor of Health Psychology and Director of the Psychology and Genetics Research Group at King's College, London. Over the past 20 years she has been conducting research on psychological aspects of prenatal testing and other types of health risk assessment.
MALCOLM McCOUBRIE (MB BS FRCGP DPMSA) is an Honorary Senior Lecturer in Disability at St George’s University of London. He has interests in disability, chronic illness and undifferentiated disorders, but has now retired from hand-to-hand General Practice. He had a major role in the development of the St George’s Health Check Questionnaire but now concentrates on a long-standing interest in hydrotherapy.
VIVIANE MERZBACH is Research Assistant in the Sport and Exercise Science Research Group at Anglia Ruskin University. Her research interests focus on the limitations to maximal oxygen uptake and nutritional implications for exercise testing. She has published work on cardiovascular and metabolic responses to maximal exercise testing.
RUTH NORTHWAY is currently Professor of Learning Disability Nursing at the University of Glamorgan where she also heads the Unit for Development in Intellectual Disabilities within the Faculty of Health, Sport and Science. She has worked within the university sector for a number of years but prior to that she worked as a learning disability nurse in both hospital and community settings. During the period 2003 – 2007 she edited the journal Learning Disability Practice and has herself published a number of journal articles and book chapters. Her teaching and research interests relate mainly to the health needs of people with learning disabilities, ethics, and reducing vulnerability and abuse. In particular she has an interest in, and experience of involvement in, participatory approaches to research.
ELENI PALIOKOSTA is a Child and Adolescent Psychiatrist who has been working for the last ten years in the field of Autism, ADHD and Developmental Disorders. She completed her PhD on Autism and she has done clinical research on ADHD and Learning Disabilities at the Institute of Psychiatry, King's College London. Since 2008, she has been working as a Consultant at MOSAIC CAMHS, an integrated specialist service for children with disabilities in Camden.
SUNIL ROUTHU is a Core Trainee in Psychiatry of Learning Disability, working in Birmingham Community Healthcare NHS Trust, Birmingham, UK.
SARAH RUTTER was Information Manager of the Down's Syndrome Association from 1990 and 2003. During those years she responded to telephone and written enquiries from parents, carers and professionals about all aspects of Down's syndrome. Her work has given her an insight into the difficulties which the parents of people with intellectual disabilities encounter in their everyday lives. She is co-author of the Down's Syndrome Association's report "He'll Never Join the Army" (1999), which gave rise to the production of this website.
MANGA SABARATNAM is Consultant Psychiatrist in Learning Disabilities, Ealing, UK, Honorary Senior Research Fellow at St. George's, University of London, and Honorary Senior Clinical Lecturer at Imperial College, London, UK.
NEILL SIMPSON is Consultant Psychiatrist with NHS Greater Glasgow & Clyde, Glasgow, UK, working in the Joint Learning Disability Team in East Dunbartonshire. From 1985 to 1999 he was a general psychiatrist with special responsibility for learning disability in Manchester. He was involved in the development of the Psychiatric Assessment Schedule for Adults with Developmental Disabilities and he has research experience of validating assessment instruments.
SUSAN SNASHALL (MB.BS (Lond), MD) Consultant in Audiological Medicine since 1980; at St. George's, University of London since 1994. Her major interest is in Paediatric Audiology and in the hearing needs of adults with learning disability. People with Down's Syndrome form a high proportion of the clients seen in both clinics. Both clinics are multidisciplinary with Advisory teachers for the Hearing Impaired and Speech and Language Therapists for the Hearing Impaired. Her approach to the development of communication skill reflects her belief that the method chosen should be client-centred and not restricted by dogma of policy.
SARITA SONI is a Consultant Learning Disability Psychiatrist working in NHS Greater Glasgow and Clyde, and Honorary Senior Lecturer at the University of Glasgow. She trained in Dublin and Cambridge. She spent three years working on a PhD at the University of Cambridge (conferred 2006), investigating psychopathology in people with Prader-Willi syndrome. Her current roles include lead clinician for the Specialist LD and Epilepsy clinic, and involvement in developing a city-wide Dementia Pathway for people with Down’s Syndrome.
SHUICHI SUETANI is a final year medical student at the University of Otago in Dunedin, New Zealand, before which he was a student at Mount Maunganui College in Tauranga, New Zealand.
K LINDSEY H STEVENS (MA (Cantab), MBBChir, MRCP, FCEM, FRSA) has been a Consultant in Emergency Medicine and Honorary Senior Lecturer in South West London for more than 26 years. She is also Foundation Training Programme Director for her Trust and Training Programme Director for the St George's rotation in Emergency Medicine. Dr Stevens also works with the Home Office and Department of Health on tackling violence against women.
YOGESH THAKKER is ST5 in Psychiatry of Learning Disability, working with Westminster Learning Disability Partnership, London, UK.
SUE TURNER trained as a nurse for people with learning disabilities in Bristol. She has worked within training, as a Nurse Advisor in Gloucestershire, and has managed a variety of services for people with learning disabilities in Gloucestershire and Bristol including community learning disability teams. Sue was the Valuing People Lead in the South West Region for four and a half years, before joining the National Development Team for inclusion (NDTi) to lead on their input into the Learning Disability Public Health Observatory (IHaL). She is now the learning disability lead at the NDTi.
JO VIOLET (DCH MRCPsych) is a Consultant Child & Adolescent Psychiatrist, at the CAMHS for Special Needs within Camden. Her clinical work includes working with adolescents and children who have an intellectual disability or autism and where there is a significant mental health problem. She also has an interest in psychotherapy, having completed a Diploma course in Child and Adolescent Psychotherapy at the Tavistock Clinic and is currently training in adult Jungian analysis.
|IRENE TUFFREY-WIJNE is Associate Professor at St George’s University and Kingston University (London). She trained as a nurse and has extensive clinical experience in both learning disability and palliative care services. Since 2001, Irene has led a programme of research focusing on learning disability, cancer and palliative care, completing her PhD in 2007. She has published widely and presented her work in the UK and across the world, and is recognised as leading international expert in the area of palliative care for people with learning disabilities. Recent work includes research on the safety of patients with learning disabilities in NHS hospitals, and the development of new guidelines for breaking bad news to people with learning disabilities (www.breakingbadnews.org). She chaired the UK based (but international) Palliative Care of People with Learning Disabilities Network (www.pcpld.org) (2008-2014) and the Taskforce on Intellectual Disabilities of the European Association of Palliative Care (2012-2015).|
LAURA WAITE has worked in services for people with disabilities for eighteen years, as support worker, home manager, day service manager and Care Manager in a variety of health, social service and voluntary sector settings across the UK.
In 1994, she moved into the field of Speech and Language Therapy for Symbol UK Ltd and in 1996 trained as a Hearing Therapist specialising in service provision to children and adults with learning disabilities, eventually becoming Symbol's Training and Development Manager. She joined RNIB's Multiple Disability service in April 2001.
J. MARGARET WOODHOUSE is currently a Senior Lecturer in the Department of Optometry & Vision Sciences. After qualifying as an Optometrist more years ago than she will admit to, Maggie carried out her PhD studies in Cambridge and the joined the staff at Cardiff, where she is actively involved in teaching and research. Maggie runs the Special Assessment Clinic to provide eye examinations for infants, children and people with special needs. From this arose her research interest in the development of vision in children with disabilities, and the effects, particularly on education, of visual impairment.
Maggie has been instrumental in developing new tests and techniques to allow the assessment of vision in people with limited communications. She often lectures to outside groups, including Optometrists, Teachers, Physiotherapists and Occupational Therapists on all aspects of vision in special needs.
JOYCE WHITTINGTON was a Senior Research Associate at the University of Cambridge prior to her retirement in 2010. Originally a mathematician, she later also graduated in psychology followed by a PhD on the topic of dyscalculia. Moving to Cambridge in 1988, she worked on human-computer interaction with the Medical Research Council, then as a psychologist on the Health and Lifestyle Survey at the University of Cambridge, before joining Tony Holland in 1998 to work on Prader-Willi syndrome. Their collaboration, together with colleagues in Cambridge and Birmingham, led to several research grants, some important original findings, a wealth of published papers, and a book on Prader-Willi syndrome published in 2004.
FIONA YARON-FIELD is a practising artist who has been using photography for over 25 years. She is a qualified Arts Psychotherapist and holds an MA (distinction) in Photography. Fiona has published 'Up Close, a Mother's View' (Bunker Hill Publishing, 2008). In her book she describes, through image and text, her relationship with her daughter Ophir who has Down's syndrome. She is a founding member of Shifting Perspectives - International Touring Exhibition challenging existing images of Down's syndrome. Fiona is a Photo-voice trained participatory photography facilitator which enables marginalized groups to use photography to represent themselves, to communicate their experience and to raise awareness. Fiona is also one of the founders and co-editors of 'Uncertain States' a lens-based contemporary photography platform. Fiona has participated in symposiums, publications and international exhibitions. Alongside her photography practice she works as an arts psychotherapist for 'Street Talk', offering therapy to vulnerable women and in private practice.